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Learning to Live with Huntington's Disease

Sandy Sulaiman

'I recommend this work of hope to everyone... HD Families, health care workers, scientists, as well as the parents, siblings, spouses, and friends of all who face a health challenge' - Jane Paulsen, Professor of Psychiatry, Neurology, Psychology and Neurosciences, University of Iowa.

Learning to Live with Huntington's Disease is one courageous family's poignant story of coping with the diagnosis, the symptoms and the effects on the family life of Huntington's Disease (HD), an incurable hereditary illness.

This book can be purchased for £15.99 (paperback) or £13.32 kindle edition on Remember you can shop using Amazon Smile and 0.5% of all eligible donations will be donated to your chosen charity.


You Me Everything

Catherine Isaac

Jess and her ten-year-old son William set off to spend the summer at Chateau de Roussignol, deep in the undulating hills and lush vineyards of Dordogne. There, her ex-boyfriend Adam runs an exquisite hotel in a restored castle and has had little to do with his son's upbringings.

But Jess is in France for a more urgent reason than a holiday: she's fulfilling the wishes of her mother who, in the late stage of a neurodegenerative disease, is determined that Willaim needs his father in his life. Over one heady, sun-drenched summer, bridges are built and secrets are uncovered, but there is one truth that nobody - especially Willaim - must discover.

*A heart - wrenching story which explores the lengths we're willing to go to for those we love' - Cosmopolitan

'Equal parts wry comedy and touching family drama, this is ultimately a heartbreaker that will stay with you long after your done. - Marie Claire.

You can purchase this book on for £12.99 paperback or £3.99 kindle edition.

Inside the O'Briens
Lisa Genova

I think this is defiantly one of the most well-known books about Huntington's Disease.

I had the pleasure of reading this book a few years back and would highly recommend it. If you would like to read my thoughts on the book please check out the review at

This book can be purchased on Amazon for £7.37 (paperback) or £5.99 for the kindle edition. Remember when shopping Amazon to use Amazon Smile and 0.5% of all eligible purchases will be donated to your chosen charity. 

If You Were Here
Alice Peterson

When her daughter Beth suddenly dies Peggy Andrews is left to pick up the pieces and take care of her granddaughter Flo. But sorting through Beth's things reveals a secret never told: Beth was sick, with the same genetic condition that claimed her father's life, and now Peggy must decide whether to keep the secret or risk destroying her granddaughter's world.Five years later, Flo is engaged and ready to move to New York with her Fiance. Peggy never told her what she discovered, but with Flo looking towards her future, Peggy realises its time to come clean and reveal that her granddaughter's life might also be at risk.Alice Patterson carried out a lot of research before writing this book, she spoke with many professionals including Dr's and members of HDA (Huntington's Disease Association) and Matt Ellison from HDYO.


Rules for 50/50 Chances
Kate McGovern.

I have had the pleasure of reading this book and I would highly recommend it. I think it is the perfect read for teenage girls or young adults. Im in my late 20's and i thoroughly enjoyed it.
*Seventeen-year-old Rose Levenson has a decision to make: Does she want to know how she might die? Because when Rose turns eighteen she can take the test that tells her if she carries the genetic mutilation for Huntington's Disease, the degenerative condition that is slowly killing her mother. With a fifty-fifty shot at inheriting her family's genetic curse, Rose is sceptical about pursuing anything that presumes she'll live to be a healthy adult - including her dream career in ballet and the possibility of falling in love. 
This is a beautifully written book, which i could relate to coming from an HD family and spending many years caring for my dad. It covers thinking about your future, being a young carer, relationships, big life decisions and lots more. This is a page-turning portrayal of living at risk of Huntington's Disease.

This book can be purchased on for around £17, there are different options for audio and used books.

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