At the HDYO Euro Camp 2016 we discussed what it was to be a carer for someone weather it Is a parent, sibling, friend or family.
This is what we came up with. It can be difficult at home and frustrating, you have to make decisions for someone else and for their life. Sometimes my dad does not always agree with the decissions my brother and I make but we need to do what we think is best for him. He is not alway thinking straight as a part of his HD.So we do the tough thinking for him. We try out best and I guess that’s all we can do, each week, moth or year we are faced with new challenges and fears but we fight through as brother and sister and keep dads best interests at heart and at the top of our peoirity list.