Dear Daddy, It's been a year,
Dear Daddy, It's been a year since you passed and so much has happened, so I wanted to write you this letter and catch you up. I made it...
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When dad was diagnosed in 2008, i felt alone, and didn't know who to speak to or where to find information about Huntington's Disease. I am delighted to see the world changing, the openness around HD, the willingness to speak out, and the variety of people willing to listen.
I am honored to have been given the opportunity to speak at wonderful events like HDYO congress in 2023, UniQure HO, Amsterdam in 2023, European Huntington's Association, Bologna in 2022, and many many more.
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2023 - UniQure Head Office, Amsterdam
2023 - UniQure photo-shoot and interview
2023 - HD Heroes Book
2023 - Huntington's Disease Youth Organisation Congress
2023 - Rarely Heard Podcast
2023 - HD - CAB Ad Board, WAVE Life Sciences
2023 - New Years Eve Wish, Jimmy Pollard
2022 - European Huntington Association, Bologna
2022 - COUCH Health Interview
2022 - HD-CAB Ad Board with UniQure and PTC, Bologna
2023 - Armagh I Interview
2022 - Enroll HD Interview
2022 - Champions for HD Take Over
2022 - University of Sterling X Scottish Huntington's Association, Huntington's Disease: A Enabling approach to supporting families
2022 - Rarely Heard Podcast
2022 - New Yeas Eve Wish, Jimmy Pollard
2021 - Help4HD Podcast
2021 - Chat Magazine
2021 - Family Matters Campaign
2021 - BBC News Victoria Derbyshire, How HD affects me
2021 - Joined HD-CAB
2021 - Joined Huntington's Disease Youth Organisation Board
3 Nations Dementia Working Group, Webinar
2020 - Awarded Champions for HD Champion
2021 - New Years Eve Wish, Jimmy Pollard
2021 - Champions for HD Podcast
2020 - Champions for HD Podcast
2019 - Armagh I Interview
2019 - Belfast Telegraph Interview
2019 - PTC blog post, Remember the caregivers
2019 - Staff member of Huntingtons Disease Association Northern Ireland (3 years)
2016 - Huntington's Disease Association Northern Ireland Medical Training Event, Belfast
2016 - Help4HD LIVE Podcast
2016 - Armagh I Interview
2016 - Stated #Imnotdrunk Lifestyle Blog
2014 Joined Huntington's Disease Association Northern Ireland Board
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